A life marked by kindness and love, now a legacy due to ARVC.
We exist to help families not have to share in our great loss from this rare, genetic mutation of the heart.
In Memory Of Shane Edward Tanzosh – 09.13.2016
Shane died of a rare genetic mutation of his heart called Arrhythmogenic Cardiomyopathy. He was 26 years old.
We hope this foundation will equip parents to not have to live through what we have had to bear, to raise funding for research, and most of all to help carry on his legacy.
The Tanzosh Family
Our mission is to honor Shane's legacy, to increase awareness in families (especially those with young, athletic sons), and to help bolster the research necessary to introduce a standard screening for early detection.
The Night Our World Changed
Shane's Story
Shane Edward Tanzosh, the son of Warwick residents Anthony and Felicia Tanzosh, was a brother, fiancé, friend, cousin and a lifelong athlete.
On Sept. 12, 2016 Tanzosh went to work at his family’s business, Green Mountain Services, and stayed after to help them with some heavy lifting. He then went home, got on his motorcycle and went to his favorite gym.
After working out he went back home, talked to his fiancé and then he was gone.
What Took Him From Us Too Soon
ARVC: Arrhythmogenic Cardiomyopathy
Shane Tanzosh, at age 26, had died of a genetic mutation called Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC), a form of heart disease that usually appears in adulthood.
ARVC is a disorder of the myocardium, which is the muscular wall of the heart. This condition causes part of the myocardium to break down over time, increasing the risk of an abnormal heartbeat (arrhythmia) and sudden death.
The Foundation
Why We Exist
There is still much to learn about this rare disease which is the No. 2 killer of young athletes. This is why we have chosen to create a foundation in Shane’s honor to contribute funds toward research and hope for early detection.
It is the hope of this foundation for no family to experience the sudden and unexpected loss of a loved son, brother, fiancé, or friend.
Hope for the Future
Raising Money, Funding Research
Donations are allocated to select partners conducting the necesary research to create an early detection screening test, especially for athletes in junior high and high school.
We thank you all for your support and love. We will never fully recover from the loss of Shane but we hope this foundation may aid us in carrying on his spirit. We hope that this foundation will help carry on his legacy of always showing kindness and love to those around him.
Contributions may be sent to:
The Shane Edward Tanzosh ARVC Heart Foundation, Inc.
1007 Club House Dr.
North Myrtle Beach, SC 29582
"At 26 years old, Shane’s heart turned off on him. We did not realize he had this condition until after we lost him. Unfortunately, despite his impeccable health otherwise, his heart was like a ticking time bomb. Young men and women, particularly athletes, can develop this condition that typically goes undetected by standard heart tests."
Events and Fundraisers
Shane was a gifted athlete, a fan of his motorcycle, and a adventurous and fun-loving spirit. One way we honor his life while pursuing our cause is by hosting periodic events and fundraisers.
From golf tournaments to rides for a cause, please connect with our Facebook Page to stay in the loop about events as we choose to host them. You are welcome to reach out about helping with potential events in the future. We are always honored to see our communities step out to partner with us to aid in our mission.
Since the events of 2020, we have not been able to host as many events as we would like, but we are anxious to now begin hosting events again.